Living with CF: A Partner’s Perspective

From ages 17 to 24, I was with a wonderful person. It was us against the destructive titan, cystic fibrosis. We fought side by side, not against each other. Our relationship seemed untouchable, except by the trial of me getting better, healthier. The dependency was suddenly unnecessary, and so our roles in the relationship shifted. Ironically, we agree that breaking up was the best thing that could have happened to our relationship. At first, I plummeted, devastated.

I Have Cystic Fibrosis. This Is How I Have Sex

CF Community Blog. Cystic fibrosis can be a third wheel in a dating relationship. I’m still looking for someone who can love us both.

Guy 1: Gawd Damn this is some good ass ice cream. Guy 2: Let me get a lick of that shit dawg. Guy 1: TSIF Guy 2: Come on, you know I’m straight busted till.

We fought side by side, not against each other. Our relationship seemed untouchable, except by the trial of me getting better, healthier. The dependency was suddenly unnecessary, and so our roles in the relationship shifted. Ironically, we agree that breaking up was the best thing that could have happened to our relationship. At first, I plummeted, devastated. In my relationship, I was comfortable.

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Return to blog. About one year ago in March the movie Five Feet Apart was released. At the time, I noticed that the cystic fibrosis community was standing very strongly on both sides of the fence about this newest CF blockbuster.

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CF Community Blog. Relationships can be tough no matter what. But I have found that when you have cystic fibrosis, relationships require these three elements. By Chelsea Spruance. Living my life with cystic fibrosis, and then sharing that life publicly through social media, has brought many questions into my inbox over the years. But there is one question that always stands out: How has my relationship withstood the tests of CF? Nick, my partner of three years, and I have been through plenty of tests, CF being only one of them.

From meeting in Thailand , to long-distance dating over three time zones, to moving — and we can’t forget all the things that come with normal relationships mixed in — it’s safe to say it has been an adventure. When people ask how we make it work, many expect a response including some Harry Potter love potion, fairy godmother, or possibly a genie in a bottle. I hate to contradict the theory of magic, but it involves none of those things.

I believe there are three nonmagical elements that make our relationship work:. What we had to do was have continual two-sided conversations about CF. It would be all too easy for me to simply spit information at him, but that would be a monologue, not a conversation.

Cf Dating Cf

We met when we were at school. We were friends first and so he knew that I had some health issues. We started dating at the beginning of Year

It was January, when Rebecca told me she had cystic fibrosis. my husband had after we started dating, that I realized that my friends didn’t quite.

At Childfree Dating we screen every new user personally – and with a team of humans, not robots – to ensure our community is as scam-free as it is childfree. So how do we do it? After each new registration, the new user essentially gets put into a hold status until we either accept or decline the user’s profile. Our childfree staff checks profile pictures, answers to survey questions, and even at times email addresses against public databases to ensure each and every childfree match we provide is supposed to be here.

That equates to a better user experience for all, so we think it’s well worth it. At CFdating your personal information is treated like classified information, because you know what – it is. Across our entire website you’ll notice in your browser’s URL bar that each of our pages is encrypted with top-level SSL encryption – while many dating sites only include encryption on their payment pages, we’ve implemented it site-wide because we’re dead serious about digital security. Once your profile has been approved, you’re free to search matches locally or across the globe, add matches to your favorites, send messages, and even see who’s viewed your own profile or favorited you.

Designing Heterogeneous-mHealth Apps for Cystic Fibrosis Adults

The thick, sticky mucus that builds up in our lungs functions like silly puddy. As a result, people with CF harbor dangerous bacteria in their lungs and these bacteria are contagious only to other people with CF or compromised immune systems. The good news is CF is not at all contagious or dangerous to healthy people. The bad news is the cross infection risks mean people with CF are advised not to be within 6 feet of one another.

Dating with a terminal disease like cystic fibrosis is one of those things that is so difficult to do whether you’re a teenager or an adult.

We use cookies to ensure that we give you the best experience on our website. By continuing to use our site, you are agreeing to our use of cookies. You can change your cookie settings at any time if you want. Find out more in our privacy and cookies policy. This Valentine’s Day we’re exploring love and cystic fibrosis. Here, proud husband Gearoid tells us about his experience of falling in love with someone with cystic fibrosis.

Growing up in Ireland meant that I was likely to encounter someone with cystic fibrosis CF from an early age given that it has one of the highest if not the highest incidence of CF in the world. Sure enough, in primary school I met Cormac — full of enthusiasm, a big football fan and an even bigger Manchester United fan, so we got along famously. Cormac died aged 10, which sent tremors of sadness, not just through the school, but the whole community.

He loved getting stuck in to new challenges and experiences, which was something we all admired at such an early age. Fast forward a decade and I am in university studying Biological and Chemical Sciences, where we learn about the science of CF as an inherited genetic condition.

A Life with a CF Wife

I actually had no idea what CF was, so straight to the Google machine I went! Armed with a wealth of definitions and abbreviations, I was absolutely none the wiser. Sasha and I had already spoken a few times and were getting on really well. I was looking forward to our date, so I stopped trying to figure out the condition and just went with it.

She also happens to have cystic fibrosis (CF). I knew this when we first started dating and realized that if we were going to build a life together.

Many people have asked me to blog about dating and chronic illness. However, I am not an expert on this subject. Today, we welcome guest blogger, Emily. Emily is a contributor to the blog, Defying Disabilities. I have a genetic illness called cystic fibrosis CF. It affects almost the entire body, but the primarily damaged systems are the reproductive, the digestive, and the respiratory systems.

THE IMPACT OF CF ON YOUR PARTNER